Re-CHARGE: Voices about living with CHARGE syndrome
14 mars, 2024
Individuals with CHARGE syndrome can lead fulfilling lives with appropriate support, focusing on more than just medical challenges. This publication shows, through case studies and interviews, some daily lives, challenges, and achievement. Stories from Thomas, Dominic, Anna and more show the personal growth and development possible for those living with CHARGE syndrome, emphasizing the importance of understanding and support from their community.
The aim of this publication will show the diversity and give a voice to a group that seldom is heard. Hopefully, parents, legal guardians, and relatives can get a more positive picture of what life with CHARGE syndrome might look like.
Launch webinar: New publication on CHARGE syndrome
Date: April 10 2024, 12.00.
Program:
12.00 – 12.15 Introduction to the publication by the Nordic network on CHARGE syndrome
12.15 – 12.40 Questions and answers